Huntington's Disease Society of America
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My daughter’s husband tested positive for HD over ten years ago. They have a beautiful 9 year old daughter, my granddaughter, Kelly who tested negative (prenatally), thank you. It is difficult and sad to watch their struggle as a family and as individuals. My experience has taught me two things. First, it is a reminder that no matter how I wish otherwise, I cannot protect my family from painful experiences in their lives. I can only be a caring support person. As a Dad and Granddad and father-in-law, this is difficult to accept. Second, there are some things I can do, like advocate with my elected representatives on behalf of the HD Parity Act. We worked together on this and are encouraged by our successes. It is a small thing to do in the overall perspective. But many small efforts can equal big changes down the road. I am confident that the changes will come.
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