Huntington's Disease Society of America
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My name is Charles Shetcliffe, I am thirty years old, from the UK and am studying theatre and comedy in Paris, France. I am studying at the Ecole Phillipe Gaulier, which is an international school, specialising in Clown and Bouffon. Some previous students include Sacha Baron Cohen (Ali G/Borat), Helena Bonham Carter, Emma Thompson and Cal McCrystal (directed The Mighty Boosh). I have been performing for over 10 years and worked with companies such as The Invisible Circus, The Wonderclub, Arcadia, Ratupadrainpipe, InService Productions and other independent theatre makers. I have also trained ballet and performed in various shows throughout my teens. I recently found a passion for street performing and am enjoying acrobatics, fire eating and body burning. In 2008 I was diagnosed with Huntington's disease; a genetic disorder that I inherited from my father, who died early last year from it. Huntington's disease (HD) is a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline and dementia. The earliest symptoms are a general lack of coordination and an unsteady gait. As the disease advances, uncoordinated, jerky body movements become more apparent, along with a decline in mental abilities and behavioural and psychiatric problems. Physical abilities are gradually impeded until coordinated movement becomes very difficult.
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