Huntington's Disease Society of America
Hi My name is Allison Chapman and Huntington’s disease runs in my family. My grandfather succumbed to HD in 1991 and my mom was diagnosed in 2012. I was recently tested positive for HD and my sister is currently at risk. Since my mom’s diagnosis, my husband, Corey, and I have become advocates for HDSA and we want to do everything in our power to help put an end to this devastating disease.
Corey and I live in Tuscaloosa, AL where we are hosting a Team Hope Walk on Saturday, May 10th. This is our first walk and we are so eager to spread awareness about Huntington’s disease and raise money for HDSA. We hope you will join us, if you live nearby.
Last year, my family and I were lucky enough to attend HDSA’s National Convention in Jacksonville, FL, thanks to the Lundbeck Scholarship. We met so many amazing people and learned so much about the HD community. This was our drive to find a way to become involved with HDSA. It was truly a life changing experience. I highly recommend going, if you haven’t already been.
At the convention, we learned about the documentary, “Alive and Well.” We became film captains and brought a screening of the film to Tuscaloosa, back in January. I also recommend hosting a screening of your own. It’s very simple and everyone needs to see this film! It’s so powerful.
Corey and I live with our three miniature dachshunds; Ginger, Rusty, and Reese. They are our “children.” One day, we would like to extend our family by two little feet, instead of paws, but we want to take the right steps so that we don’t pass this disease on.
I would like to take this opportunity to thank HDSA for all their hard work and for making events like the Team Hope Walk and the National Conventions possible. It’s so comforting to know that we are not alone on this journey.
The Team Hope Walk- Tuscaloosa, TN. Is taking place on Saturday, May 10, 2014. Visit www.hdsa.org/thwtuscaloosa for more information.