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Committee: National Field Committee
For Theresa Hughes, Huntington's disease has been a part of her life since the age of six, when she was told that her mother had the disease; that her and her siblings had a 50/50 chance of being at risk and there was no cure. Ms. Hughes feels that a lot has transpired in the world around Huntington's disease since the 1960's when she received the news about her mother. Ms. Hughes has lost four siblings and one nephew to Huntington's disease.
In the last nine years, Theresa has volunteered for HDSA first by starting the Delaware Affiliate, transitioning it to the Delaware Chapter, volunteering on the National Field Committee and finally having the privilege to serve as a Trustee on the Board of HDSA. She has said, "Every time we lose a family member or have a new diagnosis of Huntington's disease among our friends and families, I grieve." Instead of using that energy to hide out, she chose to volunteer and work as hard as she could to move toward viable treatments and hopefully, a cure.
Theresa currently serves as the Chief Fiduciary Officer at New York Private Trust Company and she has a vast financial professional background specializing in trust management for high net worth and ultra-high net worth clients. During her career she has worked as a Vice President at Morgan Stanley Trust, N.A. and Wilmington Trust. She received her MBA in Finance from Wilmington College.